The Ribbons Community Juries aimed to explore the views of the public, at a societal level, of using a variety of innovations to identify people’s risk of cancer and using this to prioritise them for screening or diagnostic tests. We conducted three online and in-person community juries with 7-9 participants in each. After an introduction to the study, participants watched pre-recorded presentations that detailed the key clinical, ethical and regulatory concepts for future risk-based innovations (using six exemplars). Each was followed by questions and answers. We then conducted focus groups to encourage participants to consider and share their views as the group (facilitated discussion 1), then left the participants to seek an agreement on the research questions (unfacilitated deliberation). Once the participants were ready, they shared their verdicts (feedback session). Finally, the participants considered barriers and facilitators to acceptability in a final focus group (facilitated discussion 2).

The dataset is the anonymised transcripts from the community juries (question and answer session, facilitated discussion 1, unfacilitated deliberation, feedback session and facilitated discussion 2).

Consent was given by the participants to share anonymised data with other responsible researchers. As consent was not given by participants to share publicly it is not possible to add the data to the repository. Instead, the data are stored within the Primary Care Unit and researchers can request access by contacting PCU_DATA@medschl.cam.ac.uk or Dr Rebecca Dennison (rl423@medschl.cam.ac.uk). Applicants will be required to complete a Data Access Agreement that will indicate the criteria for data access and conditions for research use and will incorporate privacy and confidentiality standards to ensure data security.

Study documents (protocol, participant information sheet, consent form, jury outline, topic guide, and questionnaires) are included with this record.