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Patient experiences of follow-up care after kidney cancer surgery: focus group study dataset


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Authors

Usher-Smith, Juliet 
Stewart, Grant 

Description

This data was collected as part of a study exploring patient experiences of follow-up care after kidney cancer surgery. Participants were invited to focus groups in which they discussed their experiences. Prior to the focus groups, each participant also completed a short survey. The data includes anonymised survey responses and the pseudo-anonymised transcripts of each focus group. As consent was not given to share publically it is not possible to add the data to the repository. Instead, the data are stored within the Primary Care Unit and researchers can request access by contacting Dr Juliet Usher-Smith (jau20@medschl.cam.ac.uk) or PCU_DATA@medschl.cam.ac.uk. Applicants will be required to complete a Data Access Agreement that will indicate the criteria for data access and conditions for research use and will incorporate privacy and confidentiality standards to ensure data security. A copy of the questionnaire and participant information sheet are accessible.

Version

Software / Usage instructions

n/a

Keywords

focus groups, follow-up, kidney cancer, patient experience, risk stratification

Publisher

Sponsorship
Received funding from Kidney Cancer UK for non-staff costs - via a grant held by Professor Grant Stewart in the department of surgery REDY.GAAA
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